Once again – I’ve been neglecting my blogging. I’ve sworn to myself that this blog would be a manifestation of all the crazy adventures and experiences in my life. Positivity vs negativity. Which is precisely why I haven’t been writing. The end of 2014 and beginning of 2015 brought with it some very difficult hurdles. There were kidney stones, stress of the holidays, my standard Christmas cold, my February battle with the Flu and then ….. the loss of an amazing friend. I am not going to turn this post or blog into a haven for doom and gloom. Jess wouldn’t want that and I don’t want that. She was an outstanding person with an amazing determination. She knew what it was like to fight an invisible connective tissue disease – that takes more out of you than sometimes you are willing to put in. She was there to listen and tell me exactly what I needed to do/get tested for next. She was my go-to guru, lunch partner, confidant, fangirl-ing friend. I miss her terribly. I could do a whole post – about Jess – about how she fought lupus, never gave up and encouraged me to live my life to the fullest. Which is why – this blog is going to be about what I AM doing – to live my life, enjoy everyday and continue the fight.
To find out more about lupus, overlap diseases and other autoimmune diseases check out these links:
www.lupus.org – a great resource on what it means to have lupus and resources for family/friends
www.mollysfund.org – a great page that discusses what it is like to live with lupus and overlap diseases
www.butyoudontlooksick.com – resources, articles, etc – for anyone living with/with someone who has an invisible illness
I don’t really like to talk about my RA – especially on my blog because often I feel that it’s a depressing topic. No one wants to read about aches and pains. However, lately I’ve been feeling a lot of comfort in reading RA blogs .. knowing that other people are experiencing the same things that I experience and that I’m not alone. Often when I tell people I have Rheumatoid Arthritis – I get the standard responses
1.)Oh I have arthritis in my _______ (fill joint in here).
2.) My mom/dad have arthritis.
3.) You’re too young to have arthritis.
4.) Oh but you look so healthy.
The truth is – and it’s been said a BILLION times by people with RA – is that it’s NOTHING like your arthritis, it doesn’t matter how old you are (children as young as a 1 year old are diagnosed with RA), taking good and healthy takes A LOT of effort and time.
Finding the time to do the things I love can be challenging. Most certainly during the school year, but even during summer vacation. And ever I was diagnosed with RA (Arthritis is not just a disease of old age. Two-thirds of people with arthritis are under the age of 65, including 300,000 children.) two years ago – it’s been an uphill battle with walking, bending, cooking, sitting, sleeping, eating and pretty much doing any kind of normal function. It broke my heart to have to give up some of the things I absolutely LOVE to do. That’s why – on a good day – when I can – I strap my hiking shoes on, queue up my Playlist, lead up Harley and head out into the woods. Last week I was finally able to get out on a walk with Big H. He’s been cooped up for the better half of two years – except for the occasional walk around our local development and yard time (of course). Harley has been off leash trained since he was 6 months old and the beagle in him loves a good nature sniff. So, I loaded him into the car and headed off to trek around one of the local hiking trails in my neck of the woods. If pups can experience pure BLISS – Harley sure was! Mentally – I always feel my best during a hike – but it was even more special to experience my first walk -in a long time -with him. I love how I just never know what we’re going to find. Every turn, bridge and path – leads to a new adventure that’s never the same the next time we trek out. An hour and half later – we had discovered a turkey nest, caught some grasshoppers, spotted a fawn and snapped some cool shots. Was I sore by the end? ABSOLUTELY. Did it wet my appetite to get out there a bit more often? You had better believe it! Was it worth it to see Harley smile – EVERY BIT !!!!
Are you like me ? Do you feel more at peace in the woods or are you more of a beach/city person?